Showing posts with label speech therapy. Show all posts
Showing posts with label speech therapy. Show all posts

Sunday, November 30, 2014

Caleb: Amazing Autism Update!

I'm pretty excited to get to share this post with you.

No, let me try that again.

I'm ECSTATIC to get to share this post with you!

This summer, I wrote about how Caleb was diagnosed with autism and the challenge that presented to our family. It was a hard summer getting used to that idea. We chose to continue his speech therapy and added essential oils to his routine to help with grounding and focusing him. This summer, he barely had any words, and although he still doesn't have a huge vocabulary....

....this happened.

(Note: there is no sound while the words are running. Sounds begins when the video of Caleb starts.)

I put the video together, but it doesn't matter how many times I watch it, it still makes me cry. Not only is Caleb clearly saying words without hesitating, he is recognizing the words on the cards. I wrote the words with a black sharpie on white index cards. That's it. Nothing else is on the cards to giveaway which color he needed to name. I knew that Caleb was smart, but he was so trapped in his head, that he couldn't get out. He was frustrated, and we were frustrated for him.

All I can say is that God is GOOD!

He has allowed Caleb to make strides over the last few months that are bigger than we had hoped for. I am so very proud of him for working so hard despite the frustrations he deals with while trying to communicate.

We certainly haven't "arrived" yet. We have a long ways to go, and we are still working on language, choosing to communicate with words, and helping him with coping skills. However, this right here is a huge glimmer of hope for what I know Caleb can and will do in the future.

I hope y'all are smiling, because I sure am! :)

Friday, February 28, 2014

So, This is Goodbye...

This is such a hard post for me to write.

Not hard in a bad way. Quite the opposite really because we have come so far. But it is so bittersweet to have reached this milestone.

We spent last week saying goodbye to our therapists as they each stopped in for one last session. As of Sunday, they officially aged out of the Missouri First Steps program. Of course, they aged in to Special Education Preschool, but that doesn't make saying goodbye to our friends any easier.

I took photos of the kids with each of their therapists as they came by. I think the hardest thing for me was knowing that the kids didn't understand that we were saying goodbye. They love our therapists, and already miss them since they weren't here this week.

On Monday, Jessica came for her last session. Jessica has been working with the kids for about two years. She has come 3-4 times a month to help them with their physical therapy. Things like walking, sitting, climbing stairs, and jumping. She pushed them hard (and they didn't always like it), but all of our kids made great progress with her help.
It was Abby's day for Jessica's last session.

Caleb (who refused to cooperate), Abby, Jessica, Ellie, and Elijah

On Wednesday, Tasha came to see the kids for the last time. She was so kind to bring a birthday gift for each of them to celebrate this new milestone. Tasha has been with us for about one year. She was tasked with their speech therapy. The woman has an insane amount of patience working with kids who have language delays. The way I see it, you can make a kid sit, you can make a kid point to photos, but you can't make a kid talk. Tasha was awesome! Her patience working with the kids really went far.
Tasha handing out birthday gifts.

Elijah, Ellie, Tasha, Abby, and Caleb

But by far, the hardest day for me was Friday. On Friday, we had to say goodbye to Debbie, our Occupational Therapist. Debbie has been with us from day one. She was at our intake meeting, and she has been in our house 2-3 times a week for the last 2.5 years. That's at the very least, we have had 300 visits or 18,000 minutes spent with her in our home. That is a lot of time. She has seen me in every state from being put together to falling apart at the seams. I've cried through frustrations with her, announced to her that I was finished with motherhood, and pawned extra homemade cinnamon rolls off on her.
Ellie, Abby, Debbie, Caleb, and Elijah

It just about killed me to see her walk out the door. You get attached to these people, you know? They become friends, representatives of stability when you never know what will happen with your kids next...in many ways, they become family.
Debbie and Mommy...saying goodbye.

This week was our first week without our therapists. And the kids noticed. Ellie and I had the following conversation this week:

Ellie: Miss Debbie is here!
Me: Oh no, sweetie. Miss Debbie isn't here. She isn't coming back.
Ellie: She's here! She's here!
Me: She's not here, honey.
Ellie: *runs over to the front door to look for her* Where is she? I can't find her!
Me: I'm so sorry, Baby Girl. She isn't coming to see us today.
Ellie: Oh...okay.

Break. My. Heart.
Ellie was especially attached to Miss Debbie

All that to say, these sweet ladies have left a lasting impression on our lives, and I will forever be grateful for the time they spent with my children. Our kids wouldn't be where they are developmentally, without the hours and hours and hours that they put in. I know they love our kids, and our kids love them. Heck, I love them too.

Many thanks for all you've done, Jessica, Tasha, and Debbie. We will miss you!

Thursday, January 23, 2014

Quad Update - Winter 2014

It's time for another Quad Update!
When they were little, I could have written an update every week. Everything changed so fast, and they were hitting milestones frequently. Of course, that was also the days of my severe sleep deprivation, so I was lucky to write a post once a month. Now that they are older, I'm only moderately sleep deprived, and have more time to write, they aren't changing as quickly.

Oh well. Next time I have quads, I'll make a point of writing more updates early on. Just kidding.

BUT, they will be THREE next month. What??!! Where did the time go?? With their birthday right around the corner, I thought that it would be a good time to do another quad update (and then next month we will do Birthday Interviews!).

Side note: if you are new to the blog, you can catch up on some of the developmental and physical details in past Quad Updates: Summer 2013 and Winter 2013

Caleb
Socially, he is continuing to be more open to joining into the chaos. Our little boy who once watched from the sidelines, now jumps into the living room ruckus. He is still quite shy in new places and among new people, but we are very pleased that he is willing to give people a chance now.

Developmentally, Caleb is the furthest behind. He currently receives speech, occupational, and physical therapy. He is making progress, but still resists learning new skills and attempting anything that requires energy on his part. He is able to walk up and down stairs now though! That's his newest skill, and I'm not sure if I'm happy or sad about that.

Verbally, Caleb just said his first full sentence about two weeks ago! It was beyond exciting to hear him say that! However, he still has very limited vocabulary, and his speech therapist said he speaks at an 18 month level. That is currently his biggest hurdle. We are anxious for him to communicate with us using words. Right now, he uses a lot of pushing and pulling to get us to a location, and then puts our hands on the item to tell us what he wants. For example, if he wants a drink, he pulls us into the kitchen, and then puts our hand on the refrigerator handle. If he wants a snack, he puts our hand on the pantry rack. He's very adept at communicating without words, but when he is upset or frustrated, all he does is cry instead of telling us what is wrong. It's really frustrating for all of us.

Physically, Caleb had his annual cardiologist appointment in December. We were happy to learn that his ASD has closed! We weren't expecting to hear that. However, his PDA is still open and now needs to be repaired. He is scheduled for heart surgery in May (after cold and flu season). We are hoping that it will be outpatient, but they have told us to prepare to stay overnight just in case. The procedure itself involves putting him under general anesthesia. They will insert a catheter through an artery in his groin, run it up to his heart, and insert a plug in the hole. The worst part for him (and us!) will be that he can't walk at all or move much for 6 hours after the surgery. Yeah, still not sure how I will explain that to my three-year-old....


Abby
Socially, Abby loves people! Just absolutely LOVES people and new places and new things. She still runs up and hugs random strangers which scares this mom just a little bit while still being so funny at the same time! The expression on the home security alarm installer's face was priceless when she latched on to him. She also head butts us all the time. It's not a mean head butt...more like what a cat does when they want to be petted. She's been doing that since she started crawling, so we are hoping to break her of it before she goes on her first date. First impressions and all that jazz.

Developmentally, Abby receives speech, physical, and occupational therapy. She is making progress in each area, and has made some wonderful strides in the eating department. She will now try new foods and will take bites of food she doesn't necessarily love if we help her eat it. It's so nice not to force feed her anymore!

Verbally, she has the second most words of the kids. She talks non-stop, and it is absolutely hilarious! Most of what she says is garbled, but she is obviously saying full sentences and carrying on conversations. We know that she knows the correct words in her head, but there is still a disconnect between her brain and her mouth. We are confident that she will continue to make progress though. The most hilarious thing about that disconnect is that she thinks that Ellie's name is also Abby. She knows she's Ellie but it comes out Abby every time. Lol!

Physically, Abby is working with physical therapy on strengthening her hips. She sits in a 'W' which weakens the hips and will cause problems down the road, especially when she wants to have babies (let's not talk about that). She also flips her legs out to the side as she runs instead of moving her knees up and down. She used to do that when she walked too, but we've been able to help her hips stay more inline. We are also trying to break her of her toe walking habit. We like to avoid surgery or casting if at all possible, so instead, we are constantly telling her to walk on her feet.


Elijah
Socially, Elijah loves people too! He is such a ham and looks for any opportunity to love and be loved on. The hardest part about Elijah is that he has such a sensitive heart. He very easily gets his feelings hurt, and that can prove to be frustrating when he is wailing. For the most part, though, he does well in public situations and with new people.

Developmentally, Elijah sees a speech therapist and an occupational therapist. He spends most of his time with both working on speech though.

Verbally, he is just behind Abby. He seems to have bursts where he picks up a bunch of new words, and then doesn't for several weeks. We are in a dry spell right now, but he's due for another language burst soon. His current favorite words are "motorcycle" and "dolphin." And yet I can't get him to say common, everyday words all the time.

Physically, Elijah has become much more "body aware." Eli is hypo-sensitive, meaning that he needs extra sensory input to process things. We used to have lots of issues with him running into things and people because he just wasn't aware of what was around him until he made contact. Thankfully, he is becoming more in tune with his surroundings, and he doesn't crash into stuff nearly as often. He still stuffs his mouth overly full though. Apparently that is part of his hypo-sensory issues: he doesn't process his mouth is full until it is stuffed.


Ellie
Socially, Ellie is always the first kid to greet a visitor, offer a hug, and say, "Bye-bye! Thanks for coming!" It's adorable, and I love her vivacious personality! She is a little reserved in new situations, but that normally lasts all of 90 seconds, and then she is off playing.

Developmentally, Ellie sees a physical and occupational therapist. Ellie still doesn't fully trust her legs, so her physical therapy time is spent working on walking on boxes, jumping up and down, and things like that. Occupationally, Ellie's time is spent sitting at the lunch table. My little girl who used to love healthy foods, especially her favorite baked chicken with steamed broccoli, has decided that she wants nothing more to do with them. In fact, she is more of a pickle when it comes to eating than Abby is. Dinner time has become extremely frustrating as she cries all of the way through unless it's one of a very few meals she will eat. We are definitely working as much as possible on this with our occupational therapist as the enjoyment factor of family dinners is completely gone.

Verbally, she is rocking it! While her language is still delayed, we can communicate with her and carry on short conversations. It's so nice to just hear what the problem is. "Mom, I have poops!" I can understand that!

Physically, Ellie had the first of two surgeries on her hemangioma a few months ago. It's healing very well, and is much less noticeable than it was before. We are really happy we made the decision to get it taken care of. This year we will have the second surgery to turn it into a straight line scar. Most likely that will happen in late summer/early fall, and then we will be done with that!

One Last Update:
And finally, we are in the process of testing and evaluating the kids with the local school district. We very unfortunately will lose all of our therapists on their third birthday as Missouri First Steps only provides services until then. With our kids still having significant delays, our options are to pay out-of-pocket for additional therapy services (unaffordable) or try to get them qualified for the Special Education program at the Early Childhood Center. If they make it, they will start preschool in late February/early March. It's a four day a week program for three hours each day. They have a full set of therapists on site, and the kids will be able to get all of their therapy services through them. Please pray they get in!! We feel that it will be very beneficial to them...and let's face it, the break would be nice for me too!

As always, we are so grateful for your support, love, and prayers for our family. We are beyond blessed to call each of you, "Friends!"

Sunday, September 8, 2013

Therapy through Play: Speech Therapy

Sheesh! I've been meaning to write about this for six months now. Time just gets away from me. I wonder why? *smile*

Back at the beginning of the year, we talked to Debbie, our Occupational Therapist, about our kids' speech development. At the time, Ellie was saying a few words, Abby was making a few sounds, Elijah had fewer sounds, and Caleb didn't have anything. We were happy when Debbie agreed that speech therapy would be a prudent move.

So we now have Debbie for Occupational Therapy, Jessica for Physical Therapy, and Tasha for Speech Therapy. We have such a great team working with the kids, and have different combinations of therapy sessions twice a week. Like Debbie and Jessica, Tasha comes to our home. The kids are in their own environment so it helps that there isn't a transition time to a new environment. (It also helps keep mommy sane!)

So although we have been working with Tasha for seven months, and it's old news at our house, I'd love to share with you how speech therapy works with our toddlers. Some of these ideas can easily be adapted to your own home if your kids are struggling to find their words.

Blowing Bubbles: One of the first things Tasha started working on was getting the kids to be aware of their lips and tongue. Bubbles are one of the items in her arsenal. Teaching them to blow bubbles helps them realize that they are in control, plus, they get the reward of seeing bubbles appear! Now she is trying to get them to blow on the actual bubbles, but it seems they think popping them is more fun. Something to keep working on!


Practicing Sounds: Debbie is the point person on our therapy team, so she is always here when Tasha is. Since Debbie is in our home two times a week, and Tasha is here only three times a month, it works out really well! With the way it is set up, Debbie knows what they are working on in speech therapy and continues working on it for the rest of the month. I really like the way that First Steps integrates the therapies together and makes sure that one person knows everything about what the kids are doing. (That's why Debbie is in some of these photos.)

I've written often about how much Sean and I enjoy reading, and how we hope to instill that love in our kids. Our therapists back us the whole way with that! When they are here, we read a lot of books and practice basic words and animal sounds. Even though Ellie isn't technically in speech, she participates in everything as well and really has monkey sounds down. Lol!

Singing Songs: With Tasha's help, we've realized that the kids do really well when rhythms and motions are associated with sounds. She said that muscle memory helps them move the sounds from their brain to their mouths. There is a scientific name for it, but I don't remember what it is. Sorry, not so helpful if you are into the technical side of things, but if you need the name, let me know and I'll find out! Hopefully you follow what I'm saying anyway. For example, we sing "Row, Row, Row Your Boat" while making rowing motions. In fact, that song is responsible for helping Caleb learn one of his very first words, "row!" That was a HUGE deal for my child who is the most speech delayed.

Whistle Blowing: What parent voluntarily gives their kids whistles? Ah, the concessions we make to meet developmental milestones! Tasha uses whistles to help them learn to pucker their lips, control their tongue, and blow out. Actually, I really love that she incorporates normal, easy to find items in their therapy. It just never would have occurred to me to use them without her!


Common Household Words: There is no way to cover all of the activities that Tasha does with our kids, but this is another great one as well. Tasha has a Little People House and all of the furniture that goes in it. The kids work on common household words for objects and activities while playing with it. The crying baby is a bit hit! (and then she takes the crying baby home, which is fine with me!)
Originally, we just had the boys set up for speech, but added Abby about a month later because she wasn't making much progress. Ellie now repeats almost everything, Abby is making some great strides, Elijah has a few words and can ask for "milk," a "show," and announce that he is "all done" with a meal. Caleb is progressing at a much slower rate, but we finally have him counting to 10 (and then he started counting backward from 10 on his own!). He does babble a TON more now that we are working so hard on it though.

We are incredibly grateful for the help and love of our therapists. Our kids are always so delighted to see them come through the door and wait at the window for them to arrive. And I'm happy to call them friends!

If you feel like your kids might be developmentally delayed, most states have a version of First Steps that will help you evaluate them for services. The therapy itself is subsidized and free or has a very minimal cost based on your family income. Early intervention is so important for kids, so if you are on the fence about it, please take a minute to look into your options and give your kids a good start on their milestones!


Curious what our Occupational Therapy looks like? Jump over there and take a peek!

Sunday, June 9, 2013

Quad Update - Summer 2013

About four months ago, I wrote a very long, very detailed update on our quadruplets. At the time, I didn't realize how long it had been since I'd done a comprehensive update. So my goal is to try to write a brief update every few months (or when I remember. Ha!).

Caleb:
Socially, Mr. Caleb is really starting to thrive! While he still finds strangers to be "scary," he is warming up to different situations more quickly these days.

Developmentally, Caleb sees a Cardiologist, Occupational Therapist, Physical Therapist, and Speech Therapy. We have been able to bring his overall developmental level up to about 20 months old. It's slow going, but the progress is encouraging!

Verbally, we've started making some progress. We started speech therapy in January, and it seems to be helping. Of course, his favorite part of speech therapy is when Miss Tasha brings out the sucker so that he can practice moving his tongue. Mommy doesn't let him have candy otherwise! Right now, he can say, "no, whoa, uh-oh, whee, one, two, three, four, five, six." He is also attempting to talk with us now, even though we haven't the slightest idea what he is saying. Still, that's a huge improvement over the silence that we had to work past. We are getting there...

Physically, now that he has found his feet and is confident walking across the room, he bounces all over the place! He still doesn't see much need in exploring new milestones, but once he figures out how they work, he embraces them.

I won't rehash all of Caleb's heart issues that need to be fixed next year, but if you want a refresher on it, please feel free to click HERE. It will take you back to the last update I wrote. All of the info about his heart is still current.

Abby:
Socially, Abby is still a people person! While she loves new places, and new people, she still enjoys playing by herself. She's funny though, because without warning, she will run up and hug random people. The security system installer was very surprised to suddenly find a 2-year-old little girl wrapped around his legs!

Developmentally, Abby keeps up with her milestones pretty well! She is seeing the Occupational Therapist and Speech Therapist (and unofficially, the Physical Therapist is keeping an eye on her when she is here working with Caleb and Elijah). She's still considered to be delayed by a couple of months, but we should catch up soon. We have added an additional session with her occupational therapist though. Her extra session is scheduled for once a month during lunchtime. At her two year checkup the pediatrician told us that she would most likely be on Boost (nutrition supplemental shakes) for the next year. Our goal over the next few months is to help her learn to eat more foods from categories other than "carbs."

Verbally, we are finally getting some words out of this girl! We originally only had Caleb and Elijah signed up for speech therapy, but we added Abby to the line up when she wasn't speaking. I guess all it took was for me to sign the paperwork. She now says, "hi, bye, see you, oh Toodles (from Mickey Mouse), one, two, three, four, five, six, seven, eight, nine, ten, show, done, socks and shoes." She also knows about 15-20 letters and can say her vowels. Goodness, once they get started, they learn quickly. She adds new words weekly.

Physically, we have been working on her balance. She has, what we like to call, "the drunken baby walk." She kind of...weaves...all over the room. It's hilarious, but a little concerning. She now wears ankle weights a couple of times a week, to help her find her footing. She also occasionally walks on her toes, and we aren't sure why since it's not all the time. Unfortunately, the ligaments in the back of her calves are starting to flatten and become more stiff, meaning that we will have a full-time toe walker if we aren't careful. She also constantly tries to sit in a "W" shape with her legs, which will cause hip issues as she gets older. She now does some exercises to stretch her legs out, along with constantly being reminded to sit with her legs in front of her. Between those and the weights, we are hoping to get on top of it.


Elijah:
Socially, Elijah is a little more reserved than Abby, but really enjoys greeting people. Ellie and Elijah are the first kids to yell, "HI!" when we walk in the door after running errands. Although he is constantly in motion, he does enjoy a good snuggle when he can find a vacant lap. Falling off of a chair won't make him cry, but if he feels like he has disappointed us, he bursts into tears. He is such a sweet, tenderhearted child.

Developmentally, Elijah is doing well! He sees the Occupational and Speech therapists. While he is still a few months behind where a full-term baby would be at this point, he is making great strides toward catching up!

Verbally, Elijah has made some great progress! At my last update, he was babbling and mouthing words. We are now getting some out of him! His words are, "hi, bye, done, one, two, three, four, five, six, seven, eight, nine, ten" along with lots of "talking" in his secret quad language. He is obviously saying sentences. We just aren't sure what they are in English yet.

Physically, Elijah doesn't sit still. Like ever. His motto for life is, "Play hard. Sleep hard." He is working on walking up and down the stairs, but other than that, we are spending more time on the verbal development these days.


Ellie:
Socially, Ellie is still her engaging, personable self. She loves everybody and makes new friends in an instant. We love her outgoing personality!

Developmentally, Ellie is the furthest ahead cognitively. She works with the Occupational and Physical therapists. It's pretty exciting to see so much making sense to her. You can see the little wheels turning in her brain and connecting thoughts and ideas. Like the rest of her siblings, she is a bit behind in her physical development. While her brothers struggle more with the motivation to learn new things, Ellie is the opposite. She can't learn new things fast enough and she can easily get frustrated. For her, it's often times a physical hiccup that stands between her and learning a new skill.

Verbally, Ellie has the most words in her vocabulary, and if I were to list them, I would need to write a separate blog post. She is learning new words daily, and I often feel like we now have a parrot in the house. We have to watch what we say! It's very exciting though! The other day I asked her to get down off of a folding chair, and she responded with, "I'm stuck!" I said, "You're not stuck, Ellie. You need to get down before you get hurt." And she replied again, "I'm stuck!" Two things: First of all, that was my first real conversation with her! She was hearing and responding to what I said. Second, since when did she learn to talk back?!?!

Physically, Ellie is working hard to master the stairs. She doesn't trust her legs or balance to get her safely to the top and back down to the bottom. She obviously wants to learn and is working hard to reach this milestone. Daddy has turned the stairs into a game and she now proudly announces, "step-y!" with every step she takes up or down.

The other thing we are working on with her is weight gain. She is also on Boost, but not because she doesn't eat. She just burns too many calories being the little bundle of awesome that she is. Slow down, girl, and put some weight on!

In summary:
All of the kids are considered to be about 20-22 months developmentally based on the skills they have. We are still behind by several months but making some great progress and will continue to work with our occupational, physical, and speech therapists to reach that point.

We have also just finished our second winter lockdown. We are extremely happy to see summer! Unfortunately, we have all been sick for four out of the five weeks since lockdown ended, but that par for the course when preemie kids start entering the real world. We are hoping to build some immune systems quickly!

Thank you for continuing to pray for and love our family!
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